Legal Aspects of Home Care and Protection of Terminal Patients' Rights to Palliative Care
Isi Artikel Utama
Abstrak
The development of the healthcare system in Indonesia has promoted home care and palliative care services as fundamental needs for terminal patients. This study analyses the legal aspects of home care provision and the protection of terminal patients' rights to palliative care based on current regulations. Through a normative study of Law No. 17 of 2023 on Health and supporting technical regulations, it was found that home care and palliative care are legal rights that must be fulfilled by the state and health facilities. The implementation of these services is regulated through the application of professional standards, protection of informed consent, medical data confidentiality, and mediation-based dispute resolution. The state is responsible for ensuring equitable access and quality of services, including providing multidisciplinary teams, essential medicines, and psychological and spiritual support. The protection of the rights of terminal patients includes enforcing informed consent for medical procedures, respecting dignity until the end of life, and involving families in decision-making. These legal implications strengthen the national health system to uphold justice, safety, and welfare for terminal patients and all parties involved.
Rincian Artikel
Bagian
Cara Mengutip
Referensi
Ando, S. (2003). Palliative Care for the Patients and Their Families. Gan to Kagaku Ryoho. Cancer & Chemotherapy.
Arisanti, N., Sasongko, E. P. S., Pandia, V., & Hilmanto, D. (2019). Implementation of Palliative Care for Patients with Terminal Diseases from the Viewpoint of Healthcare Personnel. BMC Research Notes. https://doi.org/10.1186/S13104-019-4260-X
Bennett, M.I., Davies, A.N., Higginson, I.J., & Colvin, H. (2009). Documentation and Management of Adverse Events in Home Palliative Care–Results of a Prospective Study. Journal of Pain and Symptom Management, 28(3), 225–234. https://doi.org/10.1016/j.jpainsymman.2003.11.004
Boell, S.K., & Cecez-Kecmanovic, D. (2015). On Being ‘Systematic’ in Literature Reviews. Information and Organization, 25(2), 85–99. https://doi.org/10.1016/j.infoandorg.2015.03.001
Braun, V., & Clarke, V. (2006). Using Thematic Analysis in Psychology. Qualitative Research in Psychology, 3(2), 77-101. https://doi.org/10.1191/1478088706qp063oa
Chairul Z, Hardyansah, R., Suwito, Waskito, S., & Khayru, R. K. (2023). Informed Consent as a Fundamental Right of Patients: The Law and Medical Ethics Perspective. Journal of Social Science Studies, 3(2), 209-214.
Feriadi, E. H., Khayru, R. K., Issalillah, F., Vitrianingsih, Y., & Mardikaningsih, R. (2023). Patient Autonomy, Paternalistic Healthcare Providers, and Criminal Liability in Therapeutic Contracts. Journal of Social Science Studies, 3(1), 307-318.
Gomes, B., Calanzani, N., Gysels, M., Hall, S., & Higginson, I.J. (2013). Heterogeneity and Changes in Preferences for Dying at Home: A Systematic Review. BMC Palliative Care, 12(7). https://doi.org/10.1186/1472-684X-12-7
Khayru, R. K., & Issalillah, F. (2022). Service Quality and Patient Satisfaction of Public Health Care. International Journal of Service Science, Management, Engineering, and Technology, 1(1), 20-23.
Lethy, Y. N., Issalillah, F., Vitrianingsih, Y., Darmawan, D., & Khayru, R. K. (2023). Legal Protection for Patients Against Negligence of Medical Personnel. International Journal of Service Science, Management, Engineering, and Technology, 4(2), 39–43.
Murray, S.A., Kendall, M., Grant, E., Boyd, K., Barclay, S., & Sheikh, A. (2017). Patterns of Social, Psychological, And Spiritual Decline Toward the End of Life in Lung Cancer and Heart Failure. Journal of Pain and Symptom Management, 34(4), 393–402. https://doi.org/10.1016/j.jpainsymman.2017.06.001
Nurhefi, N., Vitrianingsih, Y., & Issalillah, F. (2023). Analysis of Fulfillment of Patient Legal Protection, Doctor Accountability, and Supervision Mechanisms for the Risk of Misdiagnosis in Digital Health Consultation. Journal of Social Science Studies, 3(2), 273-284.
Radbruch, L., Payne, S., & Board of Directors of the European Association for Palliative Care. (2010). White Paper on Standards and Norms for Hospice and Palliative Care in Europe: Part 1. European Journal of Palliative Care, 17(5), 230–245. https://doi.org/10.1177/0269216309346546
Rindianti, D. F., & Nugraheni, N. (2023). The Urgency of the Existence of Approval of Medical Actions in Palliative Services. Yurisdiksi: Jurnal Wacana Hukum dan Sains. https://doi.org/10.55173/yurisdiksi.v19i3.209
Rochmawati, E., Rochmawati, E., Wiechula, R., & Cameron, K. (2016). Current Status of Palliative Care Services in Indonesia: A Literature Review. International Nursing Review. https://doi.org/10.1111/INR.12236
Sasmita, B., Darmawan, D., & Khayru, R. K. (2023). Telemedicine Regulation in Indonesia: Enhancing Patient Safety and Protection. International Journal of Service Science, Management, Engineering, and Technology, 4(3), 29–35.
Soekanto, S., & Mamudji, S. (2011). Penelitian Hukum Normatif. Jakarta: RajaGrafindo Persada. ISBN: 9789797697986
Sugianto, Herisasono, A., Darmawan, D., Gautama, E. C., & Issalillah, F. (2023). Protection of Patient Rights in the Perspective of Law and Medical Ethics in Indonesia. Journal of Social Science Studies, 3(2), 195-202.
Tamaka, R. S., Wuryani, A. I., Lethy, Y. N., Zainuddin, C., Mubarak, M., Hamzanwadi, H., ... & Hardyansah, R. (2023). Legal Review of Patients' Rights in the Health Insurance System. Studi Ilmu Sosial Indonesia Manajemen, 3(2), 69-84.
Tay, Y. L., Abu Bakar, N. S., Tumiran, R., Ab Rahman, N. H., Mohd Ma’amor, N. A. A., Yau, W. K., & Abdullah, Z. (2021). Effects of Home Visits on Quality of Life Among Older Adults: A Systematic Review Protocol. Systematic Reviews, 10(1), 307.
Twomey, F., Clifford, C., & Hurst, K. (2020). Accommodating Spiritual Needs in end of Life Care: An Exploration of Spiritual Care Provision Within UK Hospices. Palliative & Supportive Care, 18(4), 439–444. https://doi.org/10.1017/S1478951519000659
Undang-Undang Republik Indonesia Nomor 17 Tahun 2023 tentang Kesehatan.
Undang-Undang Republik Indonesia Nomor 29 Tahun 2004 tentang Praktik Kedokteran.
Undang-Undang Republik Indonesia Nomor 36 Tahun 2009 tentang Kesehatan.
Undang-Undang Republik Indonesia Nomor 38 Tahun 2014 tentang Keperawatan.
Widjaja, S. S., Rusdiana, R., Jayalie, V. F., & Amelia, R. (2022). What Contributes to Palliative Care Practice in Cancer Patients in Indonesia. Medical Archives (Sarajevo, Bosnia and Herzegovina). https://doi.org/10.5455/medarh.2022.76.464-468
Wuryani, A. I., Kaseger, H., Tamaka, R. S., Tampil, V. C., & Issalillah, F. (2023). Juridical Review of Government Legal Measures for Ensuring Rights of Patients with Mental Disorders in Social Security Administration. Bulletin of Science, Technology and Society, 2(3), 28–36.
Yatno, Y., Darmawan, D., & Khayru, R. K. (2023). Hospitals’ Legal Responsibility for Service Disruptions due to Information System Failures. Journal of Social Science Studies, 3(1), 319-330.
Zuhri, S., Saktiawan, P., Diagantara, F., Waskito, S., & Wijaya, K. (2023). Patient Rights and Medical Responsibilities in Emergency Situations: An Analysis of Law No. 17 Year 2023. Journal of Social Science Studies, 3(2), 181-186.